Optimizing Rare Disease Clinical Trials Through Patient Experience
Why Collaboration with the Rare Disease Community is Vital to Today’s Research
Improve Study Success & Patient Experience
Leverage the Power of Partnership in Your Next Trial
Clinical trials are pivotal in advancing medical research and developing treatments for rare diseases. However, an alarming 80% of trials fail to conclude on schedule, creating significant hurdles for affected patients and communities.
With an emphasis on clinical transparency, collaboration, and data privacy, our webinar provides a unique opportunity to better understand and address the challenges inherent in rare disease clinical trials to drive innovation and improve lives.
Hear From
Industry Expert Panelists
Pam CusickSVP, Rare Patient Voice
Monica Dudley-WeldonFounder, SYNGAP1 Foundation
KimberLee HeidmannEVP of Patient Experience and Customer Success, Scout
Moderated by Kuno van der Post
Chief Revenue Officer, Scout
Get Their
Rare Disease Research Insights
This discussion covers topics including:
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Challenges to rare disease trial success
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Effects on rare disease patients, families and caregivers
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The importance of patient experience (and how to enhance it)
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Partnering with rare disease communities and advocacy groups